ICP Story:
My ICP Story: ‘A Very Serious and Potentially A Deadly Condition’, By Crystal Abram (ICP Care).
In general, June is ICP (Intrahepatic Cholestasis of Pregnancy) Awareness Month. ICP is a medical condition where women experience very severe itching during pregnancy. For instance, PregnancyBeyond has teamed up with ICP Care to raise awareness of this liver disorder. That develops during pregnancy. Particularly, in which bile flow is impaired within the liver itself. Also, this condition has been shown to pose a serious risk to the unborn baby.
In today’s post, one heartbroken mom shares her story.
Oh, that infamous ‘itch’ that some proclaimed to be normal while pregnant. 2016 was a very exciting time for my husband and me. As we found out we were going to have a precious baby girl. Around 15 weeks, I had very intense itching that went on for weeks, and all I was told, was ‘oh it’s part of pregnancy’. Weeks went on and I continued to believe it was part of pregnancy.
Three weeks went by and the itch was worse. I looked up online intense itching while pregnant, and that’s when I learned about Intrahepatic Cholestasis of Pregnancy (ICP). This was foreign to me, I had never heard of this. I had a 2-year son at home, and I never had this condition with him. That same day I called my doctor’s office and begged to get tested. Because based on what I read about this high-risk pregnancy condition. It was a very serious and potentially deadly condition for my unborn daughter.
I went in for labs, and two days later I received my blood test results confirming the diagnosis of ICP. My bile acid blood test results were 72, and I prescribed the medicine to help reduce the bile acids. I started taking 500 mg of Ursodiol one time a day. I went in for follow up appointments over the next few weeks and for a routine ultrasound at 28 weeks. Unfortunately, that’s when it was discovered my precious daughter, Victoria didn’t have a heartbeat. I felt like I was in a dream, and that I was desperately wanting to wake up from. As I sat in the doctor’s office, I was avoiding the phone call I had to make to my husband while he 
was at work that morning. I called my sister-in-law first with the bad news, and once she arrived, we called my husband and told him. I waited there at the doctor’s office until my husband arrived. On Friday, May 13th, 2016, we went in to have our daughter. I never thought in a million years, that instead of leaving the hospital with our daughter in a car seat, I left with a box of pictures of her being stillborn.
The doctors initially didn’t want to test me for this because based on the statics this condition is typically seen or diagnosed during the last trimester. I was told that the next time I get pregnant they will test me for ICP asap and not wait. In August 2017, we found out we were expecting again, and at the doctor’s office, I was immediately tested for ICP at 6 weeks pregnant. My bile acids were already at 14. I was immediately started on the correct dosage of Ursodiol, at 900 mg a day, and referred to Maternal-Fetal Medicine.
These high-risk pregnancy specialists have experience in the proper treatment and management of Cholestasis of Pregnancy. With this pregnancy, there was a much better game plan set. I had scheduled Non-Stress Tests- (NST) and Bio Physical Profiles (BPP) done throughout the pregnancy, and the plan delivers by 37 weeks, due to my previous stillborn daughter. The highest my bile acid got with this pregnancy was 20, and my medication was increased to 1200 mg a day. The doctors continued to monitor and watch our son, and I delivered a healthy baby boy Aydan at 36 weeks and 3 days weighing 5 pounds and 1 ounce.
My hopes are with more research there will be a cure in the future for ICP. My experience is one that no Mother wants to only have pictures of a memory of their child. I would advise any expectant mom to continue to fight to be tested, and don’t let anyone say ‘Oh it’s normal to itch intensely while you’re pregnant’. Please always advocate for yourself and your unborn child! (Find more info. on ICP here)
About The ICP Care:
ICP Care is a 501(c)(3) nonprofit determined to help pregnant mothers who experience Intrahepatic Cholestasis of Pregnancy and to deliver healthy babies. ICP Care’s mission is to provide patient support and education. Raise public awareness, support the advancement of research, and improve health care practices. ICP Care helps to connect, support, educate, and empower those affected by ICP – Intrahepatic Cholestasis of Pregnancy.
We do this by raising awareness of the condition, distributing educational materials for patients and medical professionals, and creating a supportive community for friends and families of anyone affected by ICP. We hope that one day, all medical professionals and staff will know the proper protocol for treating Intrahepatic Cholestasis of Pregnancy, resulting in less suffering and healthier ICP babies. Find them on Facebook and at www.icpcare.org
Join us over at the PB Moms Exclusive Circle, where we invite healthcare experts to prepare us for life after childbirth and motherhood. Go to: pregnancybeyond.com/exclusive-circle.
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Great story